Subject to the Consortium Agreement, Beneficiaries shall participate in the provision and/or facilitate the access to anonymized patient’s datasets. The European Research Initiative on CLL e.v. (ERIC) acts as Research Coordinator in the data collection and the implementation of a Bench-to-bedside research project to study to determine the incidence and prevalence of other malignancies both preceding or following CLL diagnosis and their impact on the disease course and overall survival (OS). The European Research Initiative on CLL e.v. (ERIC) has facilitated the structure of the collected data, to be provided to HARMONY, and is entitled to act and sign this agreement on behalf of the Acceding Data Providers listed in Annex 3, who own the data generated from their quality assistance and healthcare activities and studies in the field of hematology. The Parties acknowledge the sensitive nature of the health data at stake and aim at protecting the interests, fundamental rights and freedoms of the patient’s by a combination of technical and organizational measures ensuring an effective anonymization of the Contributed Data.
